Health Organization for Pudendal Education

So glad you got so much relief fromDRG! One of my doctors also suggested I try DRG and place the leads at L1 and S2. I was just a bit scared when I looked at the pretty big battery he would implant in my butt. How was your recovery from the implant surgery? Would the leads stay where they are? Than...

I’ll offer some answers and an update here: I have had one battery replacement and several L1 lead replacements since my initial DRG implant installation in 2018. The S2 lead has needed no maintenance-the battery replacement was planned maintenance. I will preface this update with my opinion that wh...

I’ve had a DRG since December 2018. It was successful reducing continuous, sharp, tortuous pain. Then I was able to address the secondary issue of pelvic muscle dysfunction with much better results. My DRG leads are placed at L1 and S2. The L1 lead requires many loops to connect the lead to the batt...

I just came onto the forum to search 'colonoscopy," because I've had serious problems passing stool since a colonoscopy several months ago. Ive made some progress with PT, being able to have an unassisted BM maybe once a week. When I can pass, the stool is ropy even though my PT has found minim...

It start right now for log in. Dr HEROS via Eventbrite. Here is the link to get a ticket. He is my doctor. Starts at 6pm PCT
https://www.eventbrite.com/e/dr-heros-f ... 1?ref=eios

I’m still getting relief with my DRG. Been off oxy since Feb 8. I still get some pain with sitting and physical activity, but it’s “blunted,” not like the horrible, relentless pinching I had before. It’s manageable. My controller is an Apple iPod with an app called “Proclaim DRG.” The leads are plac...

I’ve kept a continuous chronological list of every doctor I’ve seen, treatments, medications and changes, -procedures, imaging, etc. regarding my PN. On a separate document I’ve listed every doctor/provider’s name and a link to their profile or website. I have my medical files downloaded to DropBox ...

Hi, I’ve been diagnosed with pudendal Neuralgia, being treated by Dr. Hibner and received physical therapy at Outpatient Rehab Center: Sutter Alta Bates Summit Medical Center in Oakland CA. The center has one part time pelvic therapist and I was very fortunate to get a space on her calendar. Esther ...

Hi Traci, I have pudendal Neuralgia, bilateral, diagnosed and being treated by Dr. Hibner. I had Botox into pelvic floor muscles and nerve steroids both on Feb 1, then another Nerve steroids April 11, 2018. One thing that did not change throughout it all was pain at both sides of my coccyx, includin...

I have pudendal neuralgia, diagnosed via nerve block, and have also been referred to a rheumatologist due to a Positive ANA blood test combined with joint pain symptoms. I have an enlarged liver (fatty), and my liver dr said I could have an autoimmune issue that is not liver related. Meanwhile I’m t...