Health Organization for Pudendal Education

Hi Jeanie, Thank you for your words of support. The word "UNPREDICTABLE" describes this condition to a tee and my family and I have used it constantly over the last 6 months! While I feel my symptoms and the pain/ spasms rising.... the intensity to which they can suddenly escalate to, is e...

Hi Catherine, It was wonderful to be able to speak with fellow sufferers at the public seminar. My partner and I felt the evening was extremely valuable and provided us with pieces of the jigsaw of PNE which was quite reassuring. We were not originally aware of how so many of my physical symptoms ar...

Hi Jeanie, Thank you for your words of encouragement :) I have attended the final visit and consultation with Professor Vancaillie, who is based in Sydney, and is an absolute God-send. The pain that I experience has unfortunately brought my life to a grinding halt and I have had to give up work, whi...

Hi Catherine, I am so appreciative of your post and the information regarding GAIN. Are you aware of any support groups near Sydney, NSW. After attending the Chronic Pelvic Pain Forum last week I can understand the value of having the opportunity of speaking with others regarding PNE and all that th...

Hi All, I am new to this website and am extremely grateful to find such a wealth of information from those whom experience the symptoms of PNE first hand. I was diagnosed with PNE on 2008 and since then life has changed dramatically. I used to teach Gifted children and adults training to become Teac...