Health Organization for Pudendal Education

Gmatch, I wish I could tell you what you want to hear. Dr. J made me worse with botox and Amniotic injections. Dr. Gordon gave me my life back and I wish I would have gone with him before I tried all the treatments and surgeries. He place and interstim from Boston scientific, with medtronic lead on ...

Renaat, I am so sorry after all your hard work PGAD came back. There are several people that feel stopping birth control has caused their PGAD symptoms. Please forgive yourself for taking the morning after pill. Blaming yourself is not going to be helpful to you. We have to learn to forgive ourselve...

Puffsplus, I am sorry you are going through this situation! Have you had an MRI yet? My doctor says always stimulate before you operate. I just wanted to share that you. But, please don't make your decision based off of what my doctor says. Do what you and your doctor feel is the best and follow you...

I love my Physical therapist she is a gem! After a 10 day flare, my Physical Therapist was able to get me out of the flare by massaging my bulbospongiosus muscle. This was the first piece to my PGAD puzzle and to me, it was a sign that the bulbospongiosus muscle was one of the causes of my PGAD. The...

I wanted to share my experience. I tried a controversial treatment that I want to share with you all. I hoped I would embark on a journey that would change my life for the better, but it did not work. I decided to try rTMS (Repetitive transcranial magnetic stimulation), now before you decide to stop...

It didn't work for me. It actually made my symptoms worse for a few months following the procedure.

Thank you!

Thank you so much April for the love and support. I'm also glad to have you in the FB group! I do my best to keep this group up to date, but sometimes I forget.

Here is my experience and update on spine surgery for PGAD. First, let me disclose there is no guarantee any surgery will be effective. But, since I had two herniated disc, I figured the surgery needed to be done either way. A bonus would be it curing my PGAD and taking away my back pain. Dr. Rubin ...

Thank you so much! Please keep your fingers crossed! I've done so much in less than a year. But my gut is telling me to go for it.

Hope