Health Organization for Pudendal Education

Hi Violet, I'm sorry it has taken me so long to respond to you. This is the pelvic PT I treated with (Debbie Callif). She doesn't know of any support groups in this area (southeastern Wisconsin). She did introduce me to a fellow patient who has pudendal neuralgia and we have become friends so at lea...

Hi Violet, Thank you so much for the info. I will take a look at LottaNerve's posts. Thank you for your commitment to this organization and all your thoughtful responses. I just found out today that my health insurance is denying payment for my ganglion impar block because they said it wasn't preapp...

Hello Julie, Yes, I've tried cupping. My acupuncture doc told me it doesn't reach deep enough into the pelvis to have any effect on the nerves. I still do it though on the sides of the upper butt cheek areas because I think it helps with circulation to this area and also my ligaments in this area ar...

Hi Violet, I would be interested in hearing whatever other options you think might help. A short history is I had sharp groin pain in 1984, had a laparotomy for endometriosis in 1984, pelvic pain continued, had follow up laparoscopy in 1985 where gynecologist said no endo, but so many adhesions in t...

Violet, Sure, I'm always open to new ideas. No rush on this; you can get back to me whenever it's convenient. The one thing I've been wanting to try is cold laser therapy, but I can't find anyone here in southeastern Wisconsin who will do this on external pelvic region (in the butt crack area). Than...

Hi Violet, Thank you for getting back to me. I don't think this block will work, but I gave it a try. I think after pelvic pain of 40 years' duration, there isn't much I can do to impact the constant, high intensity burning in my pelvis. The urologist and neurologist said they believe there is a str...

Hello, I recently had a ganglion impar block on 7/25/17 and am having increased sharp pain in the right side of anus, internally in the right side of vagina and right vulva and the right groin. Has anyone else experienced this? I've had chronic pelvic pain since 1984 which got a lot worse at the end...