Health Organization for Pudendal Education

Woops, that's my gabapentin brain acting up again. Too many abbreviations and crossover conditions. I have the memory and cognition of an 80 year old!

It's Ankylosing Spondylitis and is an autoimmune condition. I have damage to my hip which may point to this being my problem but I won't know until I see a rheumatologist. This post's author is suffering with both conditions and has a very similar situation to mine. This gives me some hope that if t...

I'm hoping that you're still monitoring your post. By the way, looks almost identical to my story - like reading my own. I've had PN since 2007 which was misdiagnosed and a full hysterectomy followed. I've been down a long road but FINALLY was put on the correct pain and other meds and had a remarka...

Thank you, Violet. I have a niece that does weight lifting and I'm constantly warning her to stop if she feels any pain. My mother and my sister have also had pain issues but they weren't pudendal. I read that too about the bone structure of the pelvis causing PN.

I've been out of the loop for some time now. Back when I was researching 10 years ago, pudendal neuropathy was not thought to be hereditary. Now I'm seeing some postings on different websites that doctors are telling patients that it could be hereditary. Recently through Facebook I found my biologic...

It does help with breakthrough pain but unfortunately I'm getting rashes sometimes from using it and then other times I don't. I still need to have allergy testing to see if it's something else.

I also use Ketamine, but in a compound cream. The cream is made with the following drugs:
KETAMINE 5%       
LIDOCAINE 5%        
DIAZEPAM 1%        
GABAPENTIN 6%

The nerve decompression surgery? I had one surgery with two ligaments removed on each side which freed up the nerve in both places.

That's a good suggestion. It would explain why so many people have PN much worse than others.
I will tell you that weight gain definitely makes the nerve damage worse. I know this from experience! It's all about the gravity...

Erica,
Is the "neuro-modulation therapy with a Scrambler device" similar to a spinal cord stimulator? My doctor is always open for suggestions and treatments. I keep a running list for when I go see him.