Health Organization for Pudendal Education

Welcome back to the forum. I agree with Violet---that is a wonderful username. And, as Violet said, you should absolutely not blame yourself! You did not create this health problem. The only thing I could think to add to Violet's list of ideas is heat. You might be get some relief from a heating pad...

Hi Filofax, I'm sorry to hear about the uptick in pain. That is a high dose of gabapentin. I was on it for about two years along with other meds. My dose was much lower than yours (I think the most I took was 300 2x a day), but I became worried about the side effects. You also have to taper off of i...

Hi Bart, It wasn't a problem for me. I had surgery with Hibner and he attached two contraptions to my gluteal during the surgery. One was designed to reduce infection, and the other had a wire that followed the path of the pudendal nerve (under the wound) that regularly dripped a numbing agent on th...

Hi Balenul, I'm sorry. That sounds really disappointing and frustrating. Have doctors (Hibner or others) explored the possibility that it is another nerve? Have you seen a urologist? I think Hibner may be a urogynecologist, but it may be useful to get input from a urologist. Or maybe a pain doctor w...

Hi J, As with Violet, my low quality of life played a big role in my decision. I also had phone meetings with two surgeons, and they both concluded (based on my history and medical records that I mailed them) that I had pne, so the decision to move forward was, at that point, not that difficult. I a...

Hi Balenul, I'm sorry about your struggles getting good information and help. I can't remember if I noted this in an earlier post or not, but I wanted to note that I did not and still do not have sitting pain. And because that is a little unusual, I sometimes get messages from others who also don't ...

Hi Rimrock, No, he didn't. But, I had been doing pt for a few years before the surgery, and I explained to him that it didn't help. So you've done it already with your own pt, and now he is recommending you do it with his pt? PTs definitely vary in their understanding of pn, so he may have thought i...

Hi Carnation, You asked how I knew where mine was. I didn't know for sure, but I knew it was on my left side, and the way I described an inner throbbing above my pelvic floor on the left seemed to be about where the ST and SS ligaments intersect. And then I had an MRI (using the Potter protocol) tha...

Hi Carnation, I'm glad the internal exam gave you clarity on this. It's nice to know what's going on. Like Violet I also could not do internal pt. You mentioned the burning and bruising sensation. I definitely had both and still sometimes do, especially the burning, although it is today far less oft...

Hi Rimrock, I talked with both before proceeding with surgery 6 years ago. They had (and I assume still have) a different surgical procedure. Hibner's is a little more invasive because he cuts open the ST ligament, but that approach gives the surgeon greater access to the nerve. I felt the greater a...