Health Organization for Pudendal Education

Hi Carnation, That is familiar to me. Sitting does not increase my pain (in fact, sitting is sometimes better than standing), and lying down helps it a bit. I think lying down helps because I'm relaxing the ligaments. Hibner said that some people with a small pelvis might get relief when they sit be...

My situation is the same as Violet's. My pt did try internal---probably sooner than 5 sessions in--but it was clear that it flared me so she never did it again. I recently (about a year and a half ago) tried pt again, and she did internal work to diagnose me and it flared me again, so it's clear tha...

Hi Hanna, Good luck with the upcoming appointment. From what I understand from talking to Hibner and others, MRIs are not a very useful way to diagnose pne because they so often show anything when there is entrapment (my MRI was unusual). So I would not conclude from a negative MRI that you don't ha...

Hi Pain_Darren, Many people do not experience a long time, maybe a year or more. I had some immediate improvement, but I still had flares of pain. But those flares gradually became less frequent. I think the reduction in frequency continued for about 3 years. Have you had any improvement at all? Wha...

Hi Incorrect,

What is Pohltherapie?

April

Hi Hanna, I avoid anything that I think might be causing pain. I don't know what soft wave therapy is, but if you think it is increasing your pain, I would reconsider. Have you met with a pn surgeon yet? That kind of surgeon could review your medical history and try to determine if the pudendal nerv...

Hi Setzer, I was just going to throw in a couple of additional points to the thread. You said you were confused about the fluctuations in the pain. PN pain can fluctuate a lot and for unknown reasons. In my first couple of years, I sometimes went days and even weeks without pain, and then it would k...

Hi Setzer, Welcome to the forum. This sounds frustrating. It's so hard when you don't know what's going on. The burning with urination is common with pn (I have that when I'm in a flare), and the increase in pain when sitting is common. Do you have burning pain? And it loosely matches the location o...

Hi Voorheesl,

I had pain flares with my blocks but it was pn pain. I wonder if the doctor hit your sciatic nerve when they did the block. Did they use imaging so they could see where the pudendal nerve was?

April

Hi Camelote, Welcome to Forum. So you had a nerve block in 2023 and had an increase in pain after three days and no long-term benefit? And your current doctor wants you to do another one and you are scared to do it? I would not do another one. A recent study showed that the steroid does not reduce p...