Health Organization for Pudendal Education

Hi Violet. Thank you so much for your reply. It truly has given me some hope that all is not lost yet. From what I've been reading some seem to take that little bit longer than the 1-2 year mark the Drs tell you. I suppose we are all different. I'm not going to rush into the neuromodulator just yet....

Hi Guys. I had surgery July 2015 to release the PN on my left side. So it's been 17 months and I'm not a lot better. Probably only 10% better. Still avoid sitting like the plague. My question is: have any of you who have had surgery had to wait a few years before you felt true relief? I see Prof Van...

Oh thank you Jude so much for responding. I really needed to hear this today. I'm 5 months post op now and was doing so well feeling approximately 10% better until I had a huge flare over a week ago. The pain has made me feel suicidal again. I flared from 2 days of long sitting within a week and a s...

I did read of a male patient from a Facebook pudendal nerve group being treated by Prof Vancaille. He is great Dr. Good luck.

Thanks so much Janet for your response. Sorry to hear about your feet.

Thanks so much Rosemary

I'm a week out from pudendal nerve decompression surgery with Prof Theiry Vancaille and Dr Loefler. My nerve pain feels so much worse. Do you usually feel worse for a while?

How are you doing now Judy? You would be a year out now from your surgery. I had surgery a week ago from Prof Vancaille and Dr Loefler. I would appreciate any tips you can give me for recovery. At the moment the pain is very bad. Thanks Eliza

Thanks for replying. Wonderful to hear that you are doing so well. Had my surgery last Friday and at the moment I'm in much worse nerve pain. I'm hoping this is normal to have a 'flare' after surgery. Did you feel worse for a while before you got better?

Thank you Violet. I will try this. Still learning my way around the site. How do you add the details below your name about how you got PNE and what you have tried etc? Wonderful to read that you have healed from this condition. Gives us all hope. Thanks again.