Health Organization for Pudendal Education

Hi I had a cystoscopy, which ruled out IC at beginning, but I think consultants quite often go off symptoms more now and call it painful bladder syndrome, my symptoms sound similar to yours, I have been diagnosed with vulvodynia. I don't have the pain with sitting thing, but my symptoms have settled...

Hi, have you any idea what they were called. We're they meant to contain this ingredient or were these "illegal". I know there is some sort of online group for some containing metronidazole for law suits. I, like yourself, continued using as I was in Barbados, kept going to local call in d...

When I first started with symptoms, was in Barbados for six weeks, as given something called metromona ovules, presume for thruh caused incredible burning, they just said keep taking, has anyone taken similar with bad side effects, wonder if I had allergic reaction, they just said to keep on taking....

Hi Lindsey

The Lyrica has helped my dysth vulvo considerably, excellent with anxiety also. Hope it goes well. Do you have bladder issues as well, mine is confined to burning, stinging, pulling, pins and needley etc, mild PGAD, no sitting pain.

Barbie

Thanks Patty I love swimming, breast stroke only, and no head in water. We have an outdoor pool at the gym. My Pn started with weight lifting and swimming. I know sometimes they say it can be a trigger for flare, in myself I cant be sure, as we all know we are so up and down. I will definitely give ...

Hi All Just been sorting out my "wardrobe", just a couple of rails really. Had a good sort out, but it amazes me that I, who have never been overweight, went down to 10 stones from 11 1/2 and now am edging towards 13 1/2. It all started with keeping fit, now Im just keeping fat and ugly. A...

I have struggled with dysthaetic vulvodynia for about five years, came after major back spasms after weightlifting and swimming, all then started after osteopathic massage for this. I have tried Pt, which wasn't very successful. As I don't have the "sutting" symptom, seems to rule out pude...

I wondered if anyone has tried Duloxetine for dysth vulva, I am on max dose of Lyrica, but am thinking of adding this.

Thanks