Health Organization for Pudendal Education

hi all sorry for not posting as I live where I don't have internet at the moment at port Arthur in southern tas. tablets well there's a mix that I take: palexia 200mg 1x morning/ night this really helps with pain valproate ec 200mg 1 morn/night quetiapine 1x 100mg night pristiq 1x50mmg morning was 1...

Hi all, its been a while since I have posted and spoke about the issues due to the fact I have been drugged out of my mind with the recommendations of the doctors etc. since last posted I have had 3 bouts of botox at approx 6 month intervals. the botox injected directly to the muscles does have an a...

Hi all, I have had a bugger of a time since the botox. I have had a bit of relief up until xmas just passed only needing to catheterize probably 2-3 times per week on average. still having poor control over bowels though through out this time. since January the inability to pee has been getting wors...

Hi all, an update. on sat the 23rd of aug i went in to the prince of wales hospital where i had the proposed botox injections. this was performed by Prof Vancallie all went well on the day, the doctor advised me that he had to inject a lot of the botox to get things where he wanted them. he had a fo...

thanks for the reply's, I just looked at bio feed back on the net and it looks interesting. I will talk to one of my specialists about it. the PN that creeps up over time which makes you think your crazy is worrying to say the least. I thought I had prostate issues, then cancer of some sought, then ...

Janet thanks for the reply , I have just seen a fantastic physio yesterday at the spine clinic. she is aware of pudendal issues and is of top of the need for function of the internal muscles etc that work to keep everything in place where it should be. I am having another evaluation in 8 days time r...

hi, can anyone that has this problematic pudendal pain let me know how long theirs took to get hold. I have been looked at like i'm nuts when I told them, being "Doctors and specialists" when my issues started creeping in after a fall at work. I didn't understand what was really going on a...

hi, have not had the good fortune to go back to Sydney at this stage. the insurance company along with the doctors here in Hobart are really not up to speed with pn issues. the insurance company want it explained exactly why botox is required as they are non believers', I would like the people who a...

hi all, thanks for the replies. I finally went to hospital for my epidural last week which took 2 days to get in and out, since then i have just been to depressed to get on with everything else around me. the epidural has certainly helped with my sciatica but it really has stirred up the pudendal is...

To every one that has posted here, I feel you pain and anguish. I too have seen the professor 29-4-14 and what was recommended was botox. I was told that botox can not be fought and that things would settle along with physio and self treatment, I was assured things would settle. after reading a lot ...