Search found 13 matches

by Lily721
Sun Jun 07, 2015 4:18 am
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: PGAD - persistent genital arousal disorder
Replies: 888
Views: 293123

Re: PGAD - persistent genital arousal disorder

Hi Gina Just wanted to reach out and say I know how you feel. I haven't had sex in more than 8 years and don't think I ever will again and I also get very agitated and upset when I see things I can't have on TV or whatever. It just constantly stays in my mind - why can't I have that? I work on tryin...
by Lily721
Sat May 30, 2015 2:45 am
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: Underwear
Replies: 34
Views: 20700

Re: Underwear

http://www1.macys.com/shop/product/charter-club-pretty-cotton-bikini?ID=1360376&CategoryID=225#fn=sp%3D1%26spc%3D117%26slotId%3D3%26kws%3D100%25%20cotton%20panties this may help. I hope it's ok to post the link here. The only issue with these is (for me) the lace around the legs (which can be cu...
by Lily721
Thu May 28, 2015 11:57 pm
Forum: MRI/MRN
Topic: Potter MRI results
Replies: 7
Views: 2445

Re: Potter MRI results

Wow So you're saying that not only can MRI's, at times, not show an entrapment that is there, they can suggest one is there when it isn't? It's all so hard - this whole thing. Not even to be able to trust results, or properly discuss results. And basing your operation on feedback over the phone is p...
by Lily721
Thu May 28, 2015 6:57 pm
Forum: MRI/MRN
Topic: Potter MRI results
Replies: 7
Views: 2445

Re: Potter MRI results

Hi Ezer I tell you, I'm terrified of any surgery. I sit here sometimes and wonder if I'll need a hysterectomy some day or an appendectomy. I have so little faith in Dr.'s that the thought of surgery is terrifying. That being said, I know many people who have had multiple surgeries and they are ok. I...
by Lily721
Thu May 28, 2015 5:46 am
Forum: MRI/MRN
Topic: Potter MRI results
Replies: 7
Views: 2445

Potter MRI results

Hi all I got this MRI 4/14. Not sure I posted much about it. I was re-reading it tonight and wondered how coccygeus muscles could be atrophied and 'symmetrically atrophied' at that. I mean I can't imagine what a coccygeus muscle would do or how one could keep it in good shape, know what I mean? And ...
by Lily721
Thu May 28, 2015 4:25 am
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: Underwear
Replies: 34
Views: 20700

Re: Underwear

I get mine from (sorry had to edit here) Macy's (not JC Penney) 100% cotton bikinis (though they're not like a bikini really) Not the greatest underwear in the world (as I have to cut off the lace edging which bothers my legs near where I shave) but I find them fairly comfortable and it's hard to fi...
by Lily721
Tue May 26, 2015 3:36 am
Forum: PHYSICAL THERAPY TECHNIQUES
Topic: Has PT REALLY helped anyone?
Replies: 9
Views: 6566

Re: Has PT REALLY helped anyone?

Hi I had 3 separate PT therapies with very qualified PT's (I'm in NY so I had pretty good choices) Never helped me at all. It's so frustrating. I don't know. I wouldn't tell someone not to try it, of course, but, for me, personally it never helped the burning. It helped my lower back and my legs, th...
by Lily721
Mon May 25, 2015 5:59 pm
Forum: BOTOX
Topic: List of Doctors who use Botox
Replies: 7
Views: 5369

Re: List of Doctors who use Botox

Hi Dr. Attaman This is interesting to me because I was told once years ago my problem was the obterator internus. I just got done doing some exercises for it (feet and buttocks against the wall - turn feet in to each other as far as you can, hold, turn feet out, hold) and I really flared my vaginal ...
by Lily721
Mon May 25, 2015 5:20 am
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: walking
Replies: 5
Views: 2336

Re: walking

I do walk but it doesn't feel quite right. When I start walking I tend to get an electrical feeling intense itch on the left side of the vulva (where the pain is) or I'm dragging my feet along. I have weak ankles and tendonitis in the ankles so that doesn't help. That being said, I walk anyway. I us...
by Lily721
Mon May 25, 2015 4:58 am
Forum: CAUSES & EFFECTS OF PUDENDAL NEURALGIA
Topic: Do you have central sensitization?
Replies: 24
Views: 5431

Re: Do you have central sensitization?

Hi all Sometimes I think this is what I have. CS. I saw dr. Goldstein? in NYC (not Washington) He was not able to help me at all and made some suggestions that my problem is perception and that I was a bit of a mystery to him. Not a fun few days. He didn't think botox would help me... etc. He sugges...

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