Health Organization for Pudendal Education

I got the Algovita spinal stim in May 2017. I do not like using the stim when I can feel it. It causes spasticity and worsens pain. However before I got that SCS, I had trialed the Nevro in fall 2016 and it gave me relief, a surprising amount. I felt almost normal. It uses pulses at 10,000 HZ. And i...

I was doing some Googling and he came up. This is his site.
https://www.nervemed.com/open-mr-interventional/

Thanks for this post. I'd like to add that the Waffle Gel Cushion is what I've had for 4 years now and couldn't live without it. I got it at Bed Bath and Beyond (US) I cannot do hard surfaces even for a little without a huge flair up. This allows me to sit for hours at a time.

This is an important topic. I have caused myself permanent (3+ years now) nerve damage on my left asscheek by sitting cross legged and leaning so all my weight was on my left. I have also leaned forward and put all my weight on my left inner thigh and caused what I think is obturator neuralgia. I ha...

Original topic: http://www.pudendalhope.info/forum/viewtopic.php?f=17&t=7690&p=55220&hilit=dr.+kay#p55220 You can see what I went through after Dr. Kay in Phoenix performed a cryoablation on my right pudendal nerve. Long story short, I had an experience that was nothing short of horrifyi...

I've seen so many PTs, and the latest is perhaps the worst, if for no other reason than recommending the crystal wand. I followed the instructions and my nerve has completely exploded in pain. Like, I have to hold back tears at work and I am considering killing myself. What a piece of junk. If you h...

I have a growing suspicion I might never have developed PNE if I'd never gone to physical therapy. I started pelvic floor PT almost a year before developing pudendal neuralgia. In that first year I had IC but recovered 100%. Just as my bladder healed, the PNE started with my left, then went to my ri...

I'm 24 and I have had PNE for 2 years. First on the left, then the right, then it's been the left for a year. Yesterday I woke up with a very painful and swollen labia minora on the left only. I'm still waiting on swab results for infection and STI, and theories abound. My PT says she sees genital s...

I have issues with both my right and left pudendal nerve. Often the pain is all on one side and not the other. This can switch many times a day. I have lots of ups and downs. A week ago, I was doing (relatively) well with my symptoms. Then I had PT. It was with a "sub" - as my normal PT is...

Thanks for this info. My doctor, who is listed on this website as an expert, tells me that pulsed radio frequency is not good for peripheral nerves and can damage them. I literally do not care what she says because she is so useless (I have been getting unguided nerve blocks from her and ducking her...