Health Organization for Pudendal Education

Candice. I would definitely suggest going back to your gp, take someone with you, if not your mother a friend even perhaps. brief them before you go to your appointment and have a plan of action. Sometimes its best to take it in steps. 1. First thing to do is get this acknowledged as a nerve patholo...

jenny, sorry to hear that your going through a bit of a dip at the moment. The only thing I can advise is get your GP to refer to a neurologist, and explain PN to the neurologist completely. get him to write to your GP mentioning that the next step would be a referral to a PN specialist. That's the ...

I have been in touch with the priory prostate clinic and they have confirmed that they do pudendal nerve blocks on men.
Dr Ian McCafferty, Consultant Radiologist 0121 446 1685, birminghamprostateclinic@bmihealthcare.co.uk.

hey. Candy. You need to tell your parents, and seek their support. Also , tell your doctor and get referred to a consultant - get some medical attention asap. This maybe something that you will have to deal with for a substantial amount of time. private medicine is expensive, and Im afraid a part ti...

hope you are well. You need to start researching the drugs and treatment yourself otherwise you'll just end up lost in a quagmire of latin and crypto-babble. Keep a list of your meds, strengths and formulation types. then go and do some online research, wikipedia is good for drugs. Learn about your ...

just wanted to check; did everyone start out with tingling which then led to stinging and then to pain? Or were some of you unfortunate enough to go straight to the pain stage. Just want to understand the progression of this illness

I went to see the surgeon privately before I saw Dr Greenslade, his name is MR Wong and he has a lot of experience in pelvic surgeries. He teams up with a Mr Patel who is neurosurgeon for pudendal ops. I don't know how many he has done however. But I do know he trained with Dr Robert in France. Mr W...

i wonder if there are any Bristol Team patients amongst us. I had an initial consultation with Dr Greenslade and Mr Wong. Dr Greenslade didnt charge me because he was very late for my appointment (his train had been delayed), he is such a genial fellow though. Since, I have been with an NHS nuero an...

hey, I know that in my early twenties I contracted espstein barr virus and had nerve pain and paraesthesias for months. It was initially diagnosed as fybromyalgia, but then i got better over a few months. the nerve pain was in my hands and feet, and I had problems sleeping thus one can conclude that...

(this is an email I sent to Helen, but I thought it would be good to air it) The greatest obstacle I have found is to make medical practitioners aware of this condition. I think we really should try and get a campaign going to contact every primary care surgery in the U.K and get them updated on thi...