Health Organization for Pudendal Education

Hi everyone, has anyone else got their PGAD along with endometriosis or adenomyosis and bladder symptoms? I have just found out that my endometriosis has spread even further and have had multiple failed surgeries. I know wonder if my bladder irriation and PGAD on sitting down is from the endometrois...

Hi, I have tried the valley cushion which is good but I also have piriformis syndrome and sciatica and i think it puts a lot of pressure on that. Is there anything out there better than a valley cushion? Is there a chair that my work can buy me on a trial basis? The carmichael throne cannot be tried...

Hi just thought I would check in, the botox wore off, I had it done again and the second time it made things worse not better. Now I am back to square one, I don't know if it was a fluke before or whether it is because my pelvis is more unstable and moving about more?? I am so depressed I have terri...

Hi Bertie, Do you have the same feeling if something touches your stomach like a tight waist band or leaning over the sink. I crossed my arms earlier and still felt pain in my bladder area and into the vagina! I am so scared that cystoscopy has done some serious nerve damage or something but the uro...

Hi Does anyone here have interstitial cystitis? I have the main pain in buttocks on sitting but also severe arousal symptoms on pressure to the bladder and front wall of vagina - I cannot wear tampons etc or the arousal is severe and the bladder pain is bad. I then have to urinate about 100 times a ...

Hi Richard, how did it all go?

Hi to update the Botox was in the levator ani, my pgad had improved about 40% much less intense since the Botox. I have had diarrhoea a lot but it is worth it, my piriformis pain is still agony, really want Botox for that next but dr greenslade discharged me! I was not happy he is confused he thinks...

I posted this somewhere else but Botox is helping. I had it last week and my PGAD symptoms are reducing. How long will it be for the full effect of the botox to kick in? I can't wait to feel the final results! I also feel that my SI joint is slipping out of place less often and there is less of a pu...

I posted this somewhere else but Botox is helping. I had it last week and my PGAD symptoms are reducing. How long will it be for the full effect of the botox to kick in? I can't wait to feel the final results! I also feel that my SI joint is slipping out of place less often and there is less of a pu...

Hi Poppy. I had the botox a week ago and I have to say that I beleive it is working slightly already!!!! I have a lot less PGAD and that internal spasming sensation is much milder than it was before. I hope it continues to improve with time. Does anyone now how long it takes for the full effect of b...