Health Organization for Pudendal Education

Medicare pays for my IV ketamine at 80% and I have been on it since 2011. My medigap policy pays the remaining 20% and if they don't I challenge them on appeal using a letter of medical necessity and the fact that nothing else worked for severe pudendal nerve pain. The ketamine has been a life saver...

NYT, I can't thank you enough for helping me by introducing me to our mutual friend in NY. We are working together to support our cause and bring about awareness of CRPS and the extreme treatments that are avialable for CRPS.I pray you are still responding to your IV therapy and please know that you...

NYT, I would love to contact your friend that has been through the plasma exchange program with Dr. Aradillas so please let me know how I can get in touch with her with her if she is willing. I am doing really well on my booster IV therapy every 2 months but I fear my immune system is taking over be...

NYT, Thank you for your kind reply. You have been through so much and you are still up here helping people every day! My hat is off to you for being so kind THANK YOU! I would love to hear how your friend is doing with her plasma exchange protocol. It sounds like you and I are both on the same or si...

NYT it's TCB. Good morning! I am wondering how you are doing after your treatments in Philly? I'm hoping you had great success and if not we always know there is HOPE for a cure for CRPS and PN during our lifetimes. Dr. Aradillas also diagnosed me with the CRPS and SFN and we were going to ask my in...

I try and return to the forum from time to time to keep everyone updated on IV Ketamine and Lidocaine treatment that I have been receiving for 4 years now. I have PNE and full body CRPS and I live in a world of hurt. I do however have a degree of quality life that I attribute to my regular Ketamine ...

nyt That is great news. The lidocaine works wonders for me as well. It breaks my heart that we seem to be the only ones on this forum who have been able to get help with this miserable disease. I would give anything to have some wealthy individual get behind this medication and our doctors and build...

Ketamine Infusions for 2 years now. I am reporting again to make sure everyone knows that IV Ketamine does keep my PN under control and that it may very well work for you if you can find a physician who understands the medication and how to adjust the dose on an individual basis. I have worked my wa...

nyt, Good to hear that you also are getting some relief with IV K&L. I will make the claim but have some hurdles to get over along the way.I have causalgia that started in my lumbar spine and legs 30 years ago following spine surgery then more recently (2007) moved into my pelvis following an in...

Back from another trip for four days of IV Ketamine and Lidocain for intractable PNE. I have been on IV pain meds for a year and a half now. Dr. John Claude Krusz has my pelvic pain under control and my quality of life is much improved by IV meds. I do have to have boosters every three months becaus...