Health Organization for Pudendal Education

I would just like to recommend a new book (released last week)- an ebook/kindle edition/PC edition/MAC edition etc Titled 'Staying Sane with Chronic Pain' by Niall Finn It cost about $7 Niall lives in Ireland and worked as a Mental health Nurse and Psychotherapist He is a sufferer of chronic pain an...

catherine thanks so much for ringing me- we just watched it on iview! Great to hear the word 'pudendal nerve' mentioned....maybe this will lead to a programme just on PNE! Interesting that he does so many stimulators -claiming 70% success. Good that BOTOX still used/mentioned They pronounced his nam...

Just spoke to Catherine a- who heard from Vancaillie himself today over this topic- the answer is he is no longer accepting self referrals Ie you have to be referred by a medical specialist so follow up can be organised if you are outside NSW. Good news for those around Australia and New Zealand! Va...

Hi all Haven't been on for a while, but just saw your post bindy15- is that true about Vancaillie? What a pity....hate to be starting this journey now in Perth and not be able to go! I'm 3.5yrs post surgery and i'd say i'm about 60-70% better...but now starting to get fibro symptoms (my mum has it t...

Sunil
I agree this is a great book!
fantastic strategies and easy to read...it is always on my bedside table!
cheers Ness

Kate Just read your post and want to give you hope- there is help out there! Depending on the state you live in (?), you can ask your GP to send you to a gynae who can investigate the cause, and get a referral for a womens health physio (do research/ring and ask if they have experience with PNE) and...

Dear Sunil
thanks for making the amendment above re-dr's in Perth
appreciate it very much
cheers Ness

Well I've just been to the AHPRA site and he isn't actually registered there at the moment (there is another Dr S.Adams in WA)...but the Stephen Adams I am talking about runs the 'West Perth Medical Centre' and 'Integrated Sexual Health' (he was sacked from 'Claremont Sexual Health')...if you type h...

Sunil I noted that you suggested Dr Stephen Adams in Perth...this scares me and I cannot stay quiet about posting Dr's names without knowing a patient who has seen them directly...I know you have put these names up here innocently and with the best of intentions....but this is one Dr I would not rec...

Just wanted to let you know that my physio knows of a PN aware physio in sydney who she trained- and will give me her contact details next week- someone as an alternative to Sherin- will let you know when I can!
Hope you have a good somewhat pain free weekend!
cheers Vanessa