Health Organization for Pudendal Education

I had surgery with Dr Erdugru three years ago. I made a small amount of improvement. This was not the vast advance That he was talking about.

However I have subsequently made further advances with different approaches. Life is much more comfortable for me than it used to be.

Molly

Hi, I have also been a patient in London in the early days of this condition. I would like to raise some discrepancies in the treatments not recommended. When I was seeing Dr B. There was a surgeon in London who was performing decompression surgery, a colleague of Dr B.s Dr B. Was then referring peo...

Hi, I,m from the Uk and have also had an unnecessary laparoscopy and hysterectomy which sent the pain from manageable to dreadful, like you I trusted the doctor and rushed into it as I wanted to get on with my life, huge mistake. I read somewhere a long time ago a paper written by Prof Robert who le...

I,m so sorry also that your pain has been made worse.i also had surgery with Dr Tibet, and have made no progress or at least very little, but at least I am no worse. I agree with the others, perhaps a full evaluation fro a good physio would be helpful. I hope you can find some relief, and no I do no...

I have been to a flotation tank, it was a lovely experience, quite expensive, but did,nt feel any lasting benefit. Vanessa Frank published a book about her journey with pn and her cure which was with water therapy. She had,nt suffered for that long long around a year as I remember, but has gone on t...

I,m afraid pn aware physio,s are few and far between,meaning more travelling for people who cannot sit down. I was seeing Ruth Jones for a long tine , probably 100 mile round trip, she made some difference but basically still had the problem. Sadly there isn't,t an easy answer for this terrible cond...

Hi Chrissy,

Have you had any physio from a pn aware therapist, if not that would be a good option.

Regards Molly

I had radio frequency with Dr B. It gave me about two months of reduced pain maybe 25 to 30 per cent before it went back to normal levels.

I saw Dr G from a GP referral, his secretary for his private practise is a very difficult unhelpful person to get hold of.

Regards Molly

Hi, I think Dr G does feel decompression is the best option for pudendal entrapment. I don,t know what you are referring to when you say Dr B has a good record with men with this problem, are you still referring to pne, in which case I have no idea what else he offers other than diagnostic injection...

Hi,

As a fellow Brit I would second that. having been to both places I would definitely choose Bristol. I too found Dr B to be lacking in any kind of compassion and was rushed through my consultation.

I wish we heard of more Brits who have had surgery in Bristol.

Kind regards Molly