Search found 10 matches

by janemail
Sat May 02, 2015 5:16 pm
Forum: SURGERY
Topic: Post PN Decompression Surgery - Temp Worsening Symptoms?
Replies: 15
Views: 6563

Re: Post PN Decompression Surgery - Temp Worsening Symptoms?

It's been a looooooong time but I would like to tell my story. I'll try not to keep it too long :) I had PN Decompression surgery in France 2 1/2 years ago. Dr. Bautrant did TIR surgery Dec., 2013. Following the surgery, he said it was entrapped and he was able to free the nerve and everything looke...
by janemail
Mon Jun 03, 2013 1:12 am
Forum: SURGERY
Topic: Post PN Decompression Surgery - Temp Worsening Symptoms?
Replies: 15
Views: 6563

Re: Post PN Decompression Surgery - Temp Worsening Symptoms?

Hi Cconlan, I had the TIR surgery on Dec. 14 and am still suffering greatly so I hear you big time. If I start doing stuff and do too much I will have a pain flare that knocks me for six and am bedridden for a number of days. It's rough. Be kind to yourself. I do the hydrotherapy which is soothing a...
by janemail
Wed Oct 24, 2012 3:00 am
Forum: SURGERY
Topic: PN Surgery?!
Replies: 36
Views: 9670

Re: PN Surgery?!

Hello Aurora, I have been in contact with Dr. Bautrant in France and he gave me the name of Dr. Mark Conway who has come to work with him in France. Dr. Conway is in New Hampshire and I think I am going to try to see him. So far, I have had a MRI done and spent 1100 bucks on it and it showed nothing...
by janemail
Sun Oct 21, 2012 9:48 pm
Forum: SURGERY
Topic: Having Surgery with Prof. Erdogru , advice or feedback
Replies: 10
Views: 2502

Re: Having Surgery with Prof. Erdogru , advice or feedback

Hi Shirlayneh, I was just reading that you were scheduled to receive surgery with Dr. Erdogru. Did you go? Can you let us know how it went? How are you feeling? It sounds like you have burned a trail for many of us regarding the specialist route. I know, when it gets down to it, whether one chooses ...
by janemail
Thu Sep 20, 2012 3:42 am
Forum: NERVE BLOCKS
Topic: -URGENTNerve block to clitoral branch--need advice and info.
Replies: 9
Views: 2349

Re: -URGENTNerve block to clitoral branch--need advice and i

Hey Lexie, I was just wondering how your clitoral nerve block went through Dr. Hibner's office? I can understand your frustration and how it is incredibly depressing to have to deal with this on a daily basis. I have been dealing with the burning and stinging in that area for 3 years now and I live ...
by janemail
Wed Sep 12, 2012 2:07 am
Forum: SURGERY
Topic: Success Story
Replies: 15
Views: 6998

Re: Success Story

Carolynm,
could you please explain and tell me about PRF? thank you
by janemail
Wed Aug 29, 2012 5:18 am
Forum: SURGERY
Topic: Laproscopic Surgery
Replies: 14
Views: 3946

Re: Laproscopic Surgery

I too am interested in seeing Dr. Tibet Erdogru. It just seems that his method is still effective yet less invasive in terms of cutting through ligaments. My main symptom was vulvar burning and now it has gone into a flare on not gone down. I am now feeling pulling and pain. This is awful. I am goin...
by janemail
Mon Aug 27, 2012 4:21 pm
Forum: PAIN MANAGEMENT & MEDICATIONS
Topic: outer thigh burning ?
Replies: 9
Views: 1631

Re: outer thigh burning ?

I feel the same burning but inside the vagina. I also wear ice and am trying to figure out how to keep wearing it when I go back to work. It is horrible and so depressing. The medication I am on doesn't seem to help either ( 3000 gabapentin , baclofen and tylenol #3). I wish we could find the magica...
by janemail
Sun Aug 26, 2012 5:35 am
Forum: SEATING & PHYSICAL LIFESTYLE ADAPTATIONS
Topic: Walking
Replies: 25
Views: 8109

Re: Walking

I have this pain also plus major vaginal burning. I am now trying acupuncture . Has that helped anyone? My pain block only helped for about 4 days. I wish it would have lasted 4 months.
by janemail
Sun Aug 26, 2012 4:26 am
Forum: UK & IRELAND
Topic: PN Surgery at Bristol halted due to funding.
Replies: 31
Views: 6321

Re: PN Surgery at Bristol halted due to funding.

I am trying to get to France to have have the surgery done. Do you know how I go about it. I live in Canada so it is far to go but I have been suffering for 3 years and really want to do something about it. I have jumped through all the hoops ...pain block etc., with relief only for a few days. I am...

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