Health Organization for Pudendal Education

Thanks Violet! I am glad to have a forum where I can post my experiences in the hopes of helping others and giving them hope

I just want to add that Clear Passage was covered by my health insurance - Florida Blue Cross and Blue Shield. Clear Passage does provide you with the statements to submit yourself. They are a small clinic and that is not uncommon for small PT clinics. They charge the exact same rates that I was pay...

I am certain I would not have gotten better without PT. I have had to see multiple people, all with different skill sets and varying levels of expertise. Had I only seen one or two, I know I would not have gotten better. One thing that contributed to my vaginal burning, was not PN related. It was ca...

I live in the Gainesville area. I developed PN while undergoing Pelvic PT at the University of Florida in2012 for coccyx pain. Continued PT there made me worse so I sought out Clear Passage. Kim was my primary therapist there. They do not specialize in treating PN but we're able to help me. After ab...

Hi Jax, That is great that you found a combo that worked for you. I was started on Cymbalta last month but it made my heart race, so had to stop it after a week. I dropped 10 pounds during the week I was on it, so I understand what you mean about weight loss! I have been on Lyrica for almost 4 weeks...

I think the idea of a registry is great and have sent an e-mail to my state's coordinator in the hopes of participating. I was dx'd with vulvodynia a few weeks ago but suspect PN. The GYN who diagnosed me knows nothing about PN so he basically diagnosed me based on his limited knowledge base. I boug...

hi Violet, The articles are from back issues of the NVA's newsletter which are available to NVA members -I paid $65 to join and gain access. They ask that the newsletters/articles not be distributed for public access as I guess that is how they generate funds to keep their organization going, so I w...

Thanks Violet. It is through this website and the National Vulvodynia Association's site (which has some great newsletter articles on PN) that I have been able to educate myself and am truly grateful for the info that you and others who are farther along in their journey are willing to share! Withou...

thanks Violet! Helen, I got a donut cushion and it allows me to sit for short periods and short car rides. Thanks for the advice! here is an update- MRI was a regular MRI to rule out other possible causes of pain and it came back negative. I had to stop the Cymbalta a week ago due to it causing my h...

Thanks Helen. Great advice! The blocks they do here are guided but I don't know much more than that. Will keep you posted