Health Organization for Pudendal Education

I had the same experience with gyns who do not specialize in pelvic pain and the doctor I see at this time related to my pelvic pain is also a urologist. I know of some people who have had good luck with urogyns recognizing PN symptoms, so that is a n option too. I'm glad you found someone who has a...

Pain_Darren,

Itching can be a symptom of nerve dysfunction. I occasionally have it with PN. In addition to PN I have had had obturator neuralgia off and on over the years (the nerve innervates a small spot on the inner thigh) and in that case, itching is my only symptom.

Stephanies

I have also thought there could be an underlying issue affecting the pudendal nerve that is asymptomatic but coming off an antidepressant makes it symptomatic.

Stephanies

Marky, Your symptoms could be pudendal neuralgia. I am familiar with the 24/7 kind of pain you describe and I’m sorry you are dealing with it too. I did years of PT with very knowledgeable therapists and found it only caused my pain to increase. PT can be helpful when muscle tension is the underlyin...

It sounds like your symptoms are in the distribution of the pudendal nerve. In my opinion, PT is worth a good try but if you find it isn’t helping after a couple of months or your symptoms are increasing from the PT I think it is worth reconsidering with your doctor. I also think MRIs of the lumbar ...

Hove31, What parts of your spine were imaged? Did the doctors include your pelvis/sacrum? Also, I have found that different doctor see different things as important on MRIs. Do you know a knowledgeable doctor who may be able to look at your images and give you a second opinion? I am sorry you are go...

Ayanna28, I am so sorry for all you have been through. I agree with Violet’s suggestion for an evaluation with a pelvic PT. Perhaps there is a muscular issue putting pressure on the PN and causing your PGAD or you have SI joint dysfunction. I also think for PGAD that an MRI of the pelvis is a good i...

Marky, From what I have gathered from PTs, relief should be significant in the first three months of therapy. I also think an MRI of the pelvis is a good idea to rule in/out other conditions and also to look at sacrum, the lowest part of the spine, especially the sacral nerve roots. Some end up find...

Marky,

In my experience, PN can cause the pain you describe. I suppose it could also be muscular. If your pain is primarily muscular, I think you will see at least some improvement through the PT within a few weeks.

Stephanies

SummerChild, I think if you can find a knowledgable doctor willing to look I’ve your imaging it would be a good idea to get a second opinion. I have found that different doctors see different things as important and sometimes radiologists consider some potential issues to be “incidental findings” an...