Health Organization for Pudendal Education

Lilliecat, I have had a similar feeling at times with PN where I feel the need to empty my bladder almost constantly. Luckily, I haven't had this issue in years but I did take bladder medication (I think it was called Ditropan) which helped with that symptom. Have you considered consulting with a ur...

Sk8rcruz, Thank you for the update. It is great that the DRG provided you some relief and that your doctor is working with you to implant new leads for more improvement and ga better quality of life. Thank you also for sharing your experience with the SCS. I use a Twin Cheeks cushion for driving and...

Lindsay, You mention that you have had a CT scan of the pelvis. I wonder if an MRI would show something different. Endo can sometimes be seen on an MRI. I have endo that was suspected based on MRI images and confirmed in those locations via laparoscopy. In addition, since the PN originates at the sa...

Revvy,

It sounds like you have had several procedures done over the last few months or and perhaps time is needed for healing. I have found that sometimes procedures or even just exams can be irritating and make symptoms worse. Please keep us posted on how you are doing.

Stephanies

Ross,

I am happy your PN at least feels like it isn't worsening now. How long ago did you have the cryo done? Is the doctor able to explain why you are having trouble walking after the procedure? Keep us posted on your progress.

Stephanies

I am sorry Botox made you worse. I know you have been through so much with this condition.

Stephanies

Jaxi, I don't know if you have any limitations from surgery but hip flexor and hip opening stretches seem to have helped me. I can't really explain why, maybe they loosen the obturator internus muscle? Botox into my pelvic muscles didn't help me either. I don't know when you last had Botox, but I ha...

Mugofwar,

For me, one side is worse but the other side is not symptom-free.

Stephanies

Mugofwater, If muscle tension is the primary cause of the PN symptoms, PT should help over a few months and, if not, you could ask your doctor about Botox injections to relax the pelvic floor muscles. I also think with PN it is a good idea to have MRIs of the lumbar spine and pelvis to rule in or ou...

Hi, Like Violet, my early symptoms of PN felt like both a yeast infection and a UTI. I had the feeling of constantly needing to urinate and medication was able to help with the acute phase of that symptoms as it did calm down quite a bit for me after a few months. Do you have any other PN symptoms s...