Search found 5 matches

by jo1
Wed Nov 06, 2013 10:16 pm
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: New- Pudendal or Vulvodynia?
Replies: 21
Views: 9494

Re: New- Pudendal or Vulvodynia?

Looking back I went to the pain clinic not trying to 'cure' this but to manage it, after Botox, mind altering tablets and a few ops I'd given up on a cure. I told myself this was how it was and I'd deal with using painkillers and occasional injections. And a 'cure' ensued accidentally! I am so sad t...
by jo1
Wed Nov 06, 2013 10:08 pm
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: New- Pudendal or Vulvodynia?
Replies: 21
Views: 9494

Re: New- Pudendal or Vulvodynia?

Sorry they were nerve blocks, intended to provide temporary relief for a few months at a time but after the 4th in January I haven't needed a 5th! Apparently they can turn off the pain signal permanently and I have no 'numbness' it's almost like me pre-kids. I am based in the UK and dr kothari is in...
by jo1
Wed Nov 06, 2013 5:31 pm
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: New- Pudendal or Vulvodynia?
Replies: 21
Views: 9494

Re: New- Pudendal or Vulvodynia?

I received a pm today and it made me realise that I never came back to update you all! I'm so sorry, especially as the support you gave me was so appreciated! In short, pudendal nerve damage diagnosed, was put on 6 month course of lyrica which turned me into a madwoman! Came off them, my original gy...
by jo1
Wed Oct 20, 2010 1:24 pm
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: New- Pudendal or Vulvodynia?
Replies: 21
Views: 9494

Re: New- Pudendal or Vulvodynia?

Thank you all so much for your replies. I saw my gynae this morning and she has referred me to a vulval specialist- Professor Wendy Reid on Harley Street- she sounds fab, seeing her next month- feeling quite optimistic that I may be closer to a solution and I can raise a possible pudendal nerve prob...
by jo1
Tue Oct 19, 2010 11:04 am
Forum: ANNOUNCEMENTS & COMMUNITY
Topic: New- Pudendal or Vulvodynia?
Replies: 21
Views: 9494

New- Pudendal or Vulvodynia?

Hi Just stumbled across this site- link from Vulaval Pain Society and would be grateful for any advice please. I had a difficult vaginal delivery 4 years ago and have suffered with vulval pain since, diagnosed with vulvodynia, I have had botox in my perenium to help muscles relax which works for abo...

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