Health Organization for Pudendal Education

Jackie, Just logged on to see if there were any new forum imputs. I too have Pudendal Neuropathy, I get what you mean about the walking, I am two and a half years into it now and more than a year ago, I started experimenting with the friction thing. I wouldn't go anywhere now, without the Vasselline...

Hi Anne, Thanks for the reply, I'm not sure that mine has anything to do with my ileostomy formation or indeed the hernia op I had last Feb., 11. I was great for such a long time, ie. 12 years that it doesn't seem possible that it is related. If mine is proved to be Sacral Iliac Joint related, ie. d...

Hi Anne, I also had UC for years, got colon cancer, had it all out with permanent ileostomy formed of course with anal closure but with sphincter muscle left in tact this was in 1999, one year later I had my liver transplant, all going well until late 2009, I got PN, I feel most of my pain in the so...

Hi Garth, I have had PN now for just over 2 years. In a bad flare at the moment, bed and more bed. I read with interest that your pain is in the region of the sphincter muscle, so is mine as well as perineal, it feels anal, but I don't have an anus. I had bowel cancer in 1999 and had it all removed ...

Hi Garth, I have had PN now for just over 2 years. In a bad flare at the moment, bed and more bed. I read with interest that your pain is in the region of the sphincter muscle, so is mine as well as perineal, it feels anal, but I don't have an anus. I had bowel cancer in 1999 and had it all removed ...

I have PN diagnosed late 2009, so more than 2 years in now, I find swimming good, but not too much kicking and breatstroke is a no no for legs. I can only swim laps when I'm not in a flare up phase though and I find if I try to do it 3 days in a row, that is too mch for me. What I try and do is to s...

Hi, I also have had a total colectomy with protectomy with permanent ileostomy, my PN pain is typical and feels like it is in my rectum, only I don't have one ? Want to do long haul flight from Australia to London, ie. when I get better !! Am seeing a great physio here and am having mobilisations of...