Health Organization for Pudendal Education

You can get my story here:

http://www.pudendalhope.info/forum/view ... 570#p26570

I've since learned from a very good specialist (Dr. Echenberg) about the waffle cushion and that's been amazing. His waiting room is full of them. Works for PNE and PFMD. http://www.amazon.com/Ehob-Waffle-Seat-Cushion-X171/dp/B0015TEGXM/ref=sr_1_2?ie=UTF8&qid=1338524224&sr=8-2 The best part ...

Yeah the car is by far the worst for me--really wish I had something for that.

This is amazing. I owe you one.

So far I tried a round red rubbery donut (no help! perhaps harmed some!) and an underwhelming square cushion. My physical therapist asked me yesterday to try and get a coccyx cushion and orient it the other way around so that the hole is under the genitals. I'm way interested in new suggestions abou...

Sex question for the guys: are erections by themselves painful and or damaging to the condition? I can find stuff to do in bed that doesn't involve using my junk, but worried about exacerbating the condition just from being hard. My problem isn't painful enough that I CAN'T have sex--I can definitel...

Yeah I can try. I setup an appointment, I need to at least see what it's like. Following-up on a couple of other options on Monday.

wow. that is so hard to hear about the neurologist. sounds like the first urologist i went to. but the current one is a great guy so i think his neurologist recommendation might work out. i contacted one of those PTs near me, she said there's an 8 week wait and they dont take insurance. ouch. scratc...

Good stuff! thanks for writing.

So helpful! Thank you!!