Health Organization for Pudendal Education

I just realized that I wrote that I am starting this campaign. It is definitely not just me. Someone else brought it up recently. I'm just getting us started on a unified front. Please take some time to take the survey. We want the design of the ribbon to represent us all in the best way possible, a...

Hi Everyone, I haven't been on in awhile, but I am starting a ribbon campaign. I am collecting information from individuals with PN and/or PNE, and will send the results to the HOPE board, as well as the leaders of the Pudendal Neuralgia Association. Please take some time to complete this survey! Sh...

Hi Violet! Yes, it has been tough. You are right on...it really did mess with my pelvic floor. The last time I taught, my classroom was so much closer to my office and I used a bag instead of a suitcase. It worked out much better. Yesterday, on my way to PT I kept thinking, "the handle is too l...

I'm a college counselor and instructor, and use a rolling suitcase to carry my classroom materials with me. It seems that I won't be doing this any longer as its leading to issues with my pudendal nerve. Having to twist my body and pull something heavy behind me sends pains through my rectum and dow...

Sorry for all of the posts, but now I'm getting really excited. Fundraising software has come a long way in the past few years!

I'm going to do more investigating, but this sounds great so far...and free!
http://www.activegiving.com/technology- ... aising.htm

Hi Violet! Great to hear from you! Things are going well. I'm trying to balance keeping up with my PT exercises and my 9 month old. I feel very fortunate. Had a pretty bad flare recently, but never give up hope. I'm going to be walking in a 5k for RSD for my cousin in December, and they have some re...

...here's another one...an individual fundraiser...

https://www.giveforward.com/fundraiser/ ... ef=1311699

Hi All, Fundraising and creating awareness have been on my mind again lately. Not sure if I plan to walk in another 5K, or what to do quite yet, but wanted to see if anyone else has the desire to create a fundraiser. May 1st is now standing out in my mind since that is now our day for awareness. Spe...

Hi Everyone, I will be walking to raise money for HOPE in a local community walk in Southern California on July 15. If you know anyone who would like to donate, please have them visit my blog at walking4hopepn.blogspot.com, or they can visit the fundraising site directly at http://www.razoo.com/stor...

Hello,

I have a blog as well.

walking4hopepn.blogspot.com

Thank you.

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