Health Organization for Pudendal Education

Violet --- you are absolutely correct in that pain at the pne level drives desperate moves ... desperate decisions ... perhaps from the experience of having gone thru this ordeal others can learn and maybe not repeat the same mistakes. If i had to go thru this all again I would of made the decision ...

Sometimes it's hard to believe that it was the summer of 1999 when i was struck down by pne and my life was changed forever. Although recovered about 13 years ago from pne surgery thanx to the doctors and pain clinics in France (specifically Nantes) - the damage incurred on my body, by procedures i ...

I went back and read the posts related to Ketamine infusions ... was thinking about my experience (the protocol) in Nantes in the early 2000's ... along with the slow/drip 24/7 (for 7 days) Ketamine infusion there were two additional parts ... every few hours there was a secondary drug given to me a...

Hello .... it's been at least 15-16 years since i sought post-surgery help in France .... goes back to when Dr. Bensignor was alive .... it's extremely unfortunate that i still have friends who years later post surgery are still suffering .... am looking for more recent post surgery experiences with...

I had a pain pump put in post surgery as I was so desperate and the American docs just didn't know what to do. I can tell you it was a huge mistake. Not only did it not work to control the post surgical pain but (although a rare side affect) due to the medication or some other 'unknown' reason a tum...

Although my story is elsewhere on this site I too would like to offer up my experiences with Ketamine. Between 2001-2003 I went back to France 4 times (after surgery in Nantes), checked myself into their awesome pain clinics, where they keep you 24/7, for a slow drip IV Ketamine infusion that lasted...

Yes Your Story Rings a Bell. Just as a quick note to Violet: I've been working on rewriting my story with a more detailed chronological description of what I went through. It's part of a larger project that I am working on. At it's completion I will let you know and if you'd like I will send it to y...

Hello Catherine: It's wonderful that you are doing well after 4-years post-op. Your story, like mine, is hopefully just enough to give others hope that they can get better over time. You are so right in that our lives have changed in so many ways as a result of this horrendous condition. The feeling...

Hi Lenny: If you absolutely have to sit you might want to look into getting a Roho Cushion - http://www.therohogroup.com/ These cushions are nothing like the doughnut ring. In my worst days of pain I couldn't sit at all - not even on a Roho Cushion. I only went to this type of cushion when I started...

Hi Rev800x: I can speak from my personal experiences on a few of the issues you raise: I too, was dx with pne by Dr. Antolak back when he was at the Mayo clinic (2001). Looking back now - 10 years ago - his dx was right on the money. Before I ended up at Mayo and Dr. Antolak I bounced from doctor to...