Health Organization for Pudendal Education

Wow! What wonderful information! So far, I am in the process of having the Veterans Administration (VA) get me the pain meds and nerve meds that I need. I have been payhing for them out of pocket. My pain med, Nucynta, does not have a generic. I currently have BCBS of Alabama but this will end on Ma...

What wonderful news! This website gave me answers to questions with just a click. I am suffered with PN and vulvodynia since October 2004. The last two months I finally have some relief. Burning, stinging, and irritation still flare up almost everyday. But, it is more manageable now. I have been to ...

Hi, Amanda I would like as much information you are willing to supply. I would like to know how the trial period was for you. Also, any information about the surgery, how long was the rehab, and how much help you needed and for how long after you got home. What kinds of limitations do you have on a ...

Jeanie, I could not get the PM to work either. When I was staying with family in Michigan I went to the pain clinic because I was on Lortab 10 and it wasn't helping. They put me on the same patch that you are on. I tried it for two weeks and then I Had to go to my pain mgmt in Alabama. They immediat...

Thanks for the information Don.

Debbie

Jeanie,

Unfortunately my surgery from Dr. Ansell made things worse. It will be two years in November. I also suffer from vulvodynia. I hope this is not the case for you. Have you tried Physical therapy?

Debbie

Jeanie,

Was your surgery successful. I had right TG surgery with Dr. Ansell In November of 2009.

Thanks,
Debbie

Thanks for the info on the airgo active seat cushion. Has anyone tried the theraseat cushion? Also any relief from gel cushions?
Thanks,
Debbie

Thanks Don! I will check that one out.

Debbie

Thanks everyone for the information. I have a seating pillow from ICN. Could anyone give me some information on inflatable cushions? Thanks Debbie