Health Organization for Pudendal Education

Hello, I haven't been on this site for a while as I have been attempting to get on with things. However, three years out and after a ridiculous amount of investigation I am still none the wiser as to what is causing my pain, so I thought I would ask here again as some people may have ideas. Just to ...

Hi - I read your post with interest. You mentioned that you were diagnosed with an immune mediated neuropathy. Would you mind explaining how this was diagnosed and what kind of neuropathy the doctors speculated you may have?

Just to let anybody who is interested in the UK know - there is now a 3T MRI machine at the the UCLH (University College London Hospital) in Euston/Warren Street, London. It costs about £1400 for Lumbar and Pelvis MRI read I think by Dr Margaret Hall-Craggs, a radiologist. Dunno whether the NHS cove...

Hello - my latest neurologist wants me to have a lumbar puncture as he suspects non-mechanical inflammation/infiltration of S1/S2/S3 nerve roots may be responsible for my symptons. I have had multipple MRI, including one with Doc Potter, that show no lesions or scarring in Lumbar or Pelvis. Also had...

Good question - I have also have no symptons squatting and also relaxed. Also trying to work out what the exact problem is. Have no firm diagnosis despite multiple in depth investigation. Symptons are bottock pain/perineum tingling on sitting and burning and freezing feet although not positional i.e...

Hey nyt - thanks for your thread but maybe I wasn't clear. I was 80pc sure the inferior cluneal nerve block did nought/nothing. Wasn't sure about the Ischial Spine one, too. Partly cos physio helped me temporarily for three days in the run up to the block. So couldn't real get my pudendal symptons g...

Oh - and I forgot to mention - I seem to have a highly unusual sympton related to Pudendal pain. Often when I break wind it reproduces the tingling sensation at the back of testicles/perineum. Does anybody get this to? I do not get this going for a no2 only farting. Nobody I have seen ever has poste...

I would appreciate advise from anyone who thinks they may be able to help. It is getting to the New Year and I feel I need to make some major decisions to help my situation. Some of you may recall that my problem actually started with bottock pain on sitting on the right in August 2010 and then deve...

aaaaaaaaaaaaaaaaaaahhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh - having a total mare still. The new burning feet symptons is the worse of the lot. No idea what is causing it and can't imagine it is connected to the pudendal nerve. Burning in the feet that gets worse as the day progresses. Probably the worst out...

Hello everyone - got some new symptons - now have major pins and needles in my feet, toes and sometimes heels and sometimes in my left hand, which get worse at night - definately feels like some kind of peripheral neuropathy. Really not sure whether connected to my bottock/perineal pain as is consta...