Health Organization for Pudendal Education

Hello, I’m not able to travel and I haven’t found any specialists near me The neurologists refer to the urogynecologists who refer to pain management but after being misdiagnosed a few times and two failed injections I’m just trying to gather up the strength to move on to who knows where and what. I...

Hello Violet, Thanks for your advice I don’t always know or use the right medical terms. I’m still learning, but it seems like exactly what you said My nerve is aggravated where the leg joins the hip socket It feels like it pinches in the joint which then aggravates the entire hip 10/10 the worst pa...

Hi Violet and April,

How did you know where your entrapments were prior to surgery?

I never know which way to turn.

I was thinking maybe a general surgeon about scar tissue?

This is so hard as you all know

Hello Violet, This started gradually a few weeks after surgery. It was vaginal/bladder burning pain, then it was electrical, it feels like my vagina is actually bruised. I had the lumbar and sacrum MRI but the report says nothing serious My abdomen is involved now with heaviness, bloating, cramping,...

Hello April, I had to try PT just to see if it helped. I wasn’t doing Kegels, just relaxation breathing and gentle stretching of hips and legs but it aggravated me. Doing anything or nothing at all aggravates me. I had an internal exam at PT which confirmed for me that the pudendal nerve is exactly ...

I started PT and on the 4th visit I was discharged because none of the exercises helped.
So I’m still using ice on and off all day
I think I’ll maybe try suppositories of some kind to see if it helps with muscle spasms
I’m too afraid of doing anything else right now

I hope this person is OK
This is so frightening to see
No one should be treated like this !!
I can’t even find the words to describe how bad I feel after reading the posts

Thanks for you help April, I’m on doctor #6 right now who thinks it’s PN I don’t do well on meds so I’ll be starting PT this month Not being able to stand up for longer than a few minutes is extremely disabling I almost feel normal when I’m laying down What a life! So happy to see that you were help...

I have the exact same question! It doesn’t want to calm down!

Hello,

I’m one year post-op hysterectomy

I have a lot of PN symptoms but it happens when I stand up. Sitting is not so bad, laying down relieves it.
Is this familiar to anyone else?? It’s keeping me in denial.

Help?