Health Organization for Pudendal Education

Sorry to hear that you are going through this and I hope that you will still see improvement later on. Who ended up doing your surgery? The PTs are generally telling me to avoid surgery. I can’t say that the surgeons are exactly pushing me to surgery, just telling me it’s an option if I want it and...

I don’t want to scare you away from it as it seems my response is highly atypical (based on my PTs utter bewilderment) but I went into this being told and believing there was no serious downside - maybe a few miserable months and then no relief was the worst I expected. Just throwing my experience o...

Hoping to hear some thoughts on this conundrum. I’m 36 and I’ve had pudendal neuralgia for over a decade now, and it’s not going to go away by itself. There is no doubt in my mind that the pudendal nerve is involved – I’ve had positive pudendal nerve blocks, all of the symptoms are on one (the left...

My PT has now confirmed she has never seen this happen to anyone she’s seen get the surgery.

I had TG bilateral decompression. I havent talked to the surgeon yet as I’ve been waiting to see if it would go away. It appears all the surgery has done is amplify my existing hard flaccid symptoms from a bad but livable level to a “can’t leave the house” level. Extremely pessimistic about these sy...

I know that it’s early, but honestly - the fact I can do PT with no problems concerns me more. All sorts of hard flaccid symptoms I either only had mildly or didn’t have at all before, have sprung up. The actual hard flaccid with reduced sexual sensitivity pretty much as soon as I stand up, visible ...

It can be pretty scary when the pain gets worse after surgery. I had a significant increase in pain and I was scared that I had made a huge mistake. It's common to have increased pain at the 3-4 month period after surgery when the nerve is "waking up". I couldn't even start walking much u...

Hey Natedogg, thanks for the reply. Since our symptoms were similar, just wondering - was sitting always a pretty immediate trigger for pain? Or only when you were flared up? I ask because if I wasn’t flared, I could sit on a cushion for hours and hours (sometimes) - like flights to Europe length - ...

I had bilateral pudendal nerve decompression about 10 weeks ago now. Prior to surgery, my main symptoms were that sitting extensively, exercising, bending over/squatting a lot, or sexual activity would cause increasing flaring of burning pain in my perineum/penis along the urethra/midline, followed ...