Search found 5 matches

by MysteryCase
Fri Feb 23, 2024 1:25 am
Forum: WELCOME CENTER
Topic: Help needed for complex, desperate case
Replies: 8
Views: 1245

Re: Help needed for complex, desperate case

Hey Violet, thanks for the follow-up. You continue to ask the right questions, which I appreciate. I hope this isn't tedious for you. I can't prove that the etiology was an infection. What I experienced certainly felt like one, but that's all I know: I woke up one morning with intense bladder pressu...
by MysteryCase
Sun Feb 18, 2024 11:41 pm
Forum: WELCOME CENTER
Topic: Help needed for complex, desperate case
Replies: 8
Views: 1245

Re: Help needed for complex, desperate case

Thanks for your thoughts, Violet. Like you, I am a bit torn on how to proceed. After spending the week finishing my (failed) Interstim trial, I'm really internalizing the fact that no one can find anything wrong with me internally. I have none of the classic pudendal neuralgia signs, nor do I have t...
by MysteryCase
Wed Feb 07, 2024 10:05 pm
Forum: WELCOME CENTER
Topic: Help needed for complex, desperate case
Replies: 8
Views: 1245

Re: Help needed for complex, desperate case

Thanks very much for writing, Violet. Very kind of you. Let me see if I can clarify a few things to help pinpoint what next steps might be for me. I've had 2 bilateral PN blocks. The first (without a steroid) caused numbness immediately and I had some urinary retention for maybe 4-5 hours afterwards...
by MysteryCase
Tue Feb 06, 2024 8:37 pm
Forum: WELCOME CENTER
Topic: Help needed for complex, desperate case
Replies: 8
Views: 1245

Re: Help needed for complex, desperate case

I should add that we have ruled out psychological factors here. I spent 10 years on antidepressants after this problem appeared and before it got horribly bad with the abdomen. I could live "normally," but my symptoms never changed and are unaffected by my mood or stress/anxiety levels...
by MysteryCase
Tue Feb 06, 2024 8:34 pm
Forum: WELCOME CENTER
Topic: Help needed for complex, desperate case
Replies: 8
Views: 1245

Help needed for complex, desperate case

Hi everyone, 42M, I'm writing to solicit some kind of guidance/advice on my mystery case that has baffled doctors and physical therapists for 16 years. I'll try to give a brief overview of my complex case: 16 years ago, I got what I believe was an infection/UTI. Had lots of bladder pressure, frequen...

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