Health Organization for Pudendal Education

Do you guys know anyone who has responded well good spinal cord stimulation or Dorsal root ganglion stimulation for nerve pain , pudendal nerve pain? They do them here in the UK, I spoke to the hospital today, they’re expensive but if I can get my life back to enjoy my kids I will go anything…. The ...

Thank you. I’ve booked another appointment to go and see him. To test me again for PN and to have some nerve blocks to stop the pain. I will ask for some medication as well as I can’t live like this…nerve pain just eats you inside….its horrible I have 4 months to reduce the pain as the new baby will...

I’m a male…they told me to stretch twice a day! Can you let me know what stretches you do? I was told to stretch the groin , pirfomus , hips etc….. But the pain just went wild. I was doing 5 breaths for each one….i will try again only for 5 seconds…but will rest now for a while….my main symptom is l...

Thank you Violet. It’s a pain specialist here in the UK. I will get an MRI scan on hips and lower back. I had two cortisone injections on my sitbones cause they were on fire. I managed to get the pain under control and was told to do these stretches and now my perinium is on fire….i am really strugg...

Years of pain…years of being told I have PN. I find a specialist who went in, stuck his fingers inside me who has worked with France team, pushed on my PN nerve on both sides….no pain…I don’t have it….im I so happy? He tells me I have a tight pelvic floor..But what is this pain I was told by other p...

I know…I done my research online where the majority of people call this the wonder drug for pain so I’m a bit upset that it made me feel that way….

Started the Deluxotine and lasted 9 days on it. Started on 30mg once a day. OMG this stuff is trippy. Heavily constipated. Electric shocks going through my brain in the day. I felt tired and lazy all day long. Lost all my concentration and was sleeping about 18 hours a night….no thank you I came off...

I haven’t had a recent MRI of the pelvic floor. I have private medical cover through work so I’ll see if I’m covered. I’m in the UK will a 3T be enough to see what’s going on? So many places are self referral so won’t need a letter from doctor. I’ve also asked to be prescribed Deluxotine. Is anyone ...

I played football and my life changed due to a hip injury where I carried on playing with it for over a year. I was young. Professionals wouldn’t listen and I was just getting pounded with painkillers. I finally paid for my own scans and they found a huge labral tear. By this stage I couldn’t walk ,...

Yes for about 8 years now. This pain is so evil… It messes up in your mind. You feel alone. Nobody listens which is why people need to keep on trying different things until they find the right treatment. I went down a dark hole with drugs and alcohol due to this pain and staying active has helped me...